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Drugs like these can cost more than $130,000 per year for patients with hemophilia.
Health WMFE

Hemophilia costing Florida, feds $24M per year – for 183 patients


Hemophilia is expensive, and state officials are looking for ways to save some cash. Next week, the Florida Agency for Health Care Administration is holding the first of several public meeting on hemophilia for Medicaid patients. The state will be asking the federal government for permission to have three companies, not just one, provide treatments for hemophiliacs. Hemophilia is an extremely rare blood clotting disorder; there are only about 1,000 people in Florida with the disease, according to the Hemophilia Foundation of Greater Florida. And there’s only 183 Floridians on Medicaid with the disease. But those 183 patients cost state and federal officials more than $24 million annually. That’s an average of more than $130,000 every year per …
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Sherry Poulin and her mother Laura Brennaman. Courtesy: Laura Brennaman
Local News

What Happens When Marriage Makes Health Insurance Unaffordable


It’s open enrollment season for health insurance through the Affordable Care Act. But not everybody who wants to buy insurance is finding it affordable—even when an employer offers health coverage to the whole family. Florida Health News reporter Sammy Mack spoke with one woman who’s stuck in what’s known as “the family glitch”
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